Sunday, August 31
Well, I'm down to two feedings a day, and I'm eating a little kibble, although not enough to maintain my weight on my own. I'm still hovering at 6 lbs., though, so I haven't lost much weight. I don't seem to be the slightest bit interested in drinking anything, though, and Jenny & James are still giving me IV fluids most days. The sub-q fluids are less of a pain than the tube feeding, though, so even if they have to continue the fluids Jenny says that's OK with them.
James is taking me back to Med Vet to see Dr. Forman on Thursday. He'll take blood and run a bunch of tests and look at my numbers to see how I'm doing - wish me luck!
Sunday, August 31, 2008
Thursday, August 14, 2008
Day 106
Thursday, August 14
On Friday, the 100th day since I got my feeding tube, I saw Dr. Forman for a check-up. My weight at MedVet was 6 lbs., 2 oz.! He's really pleased with how I'm doing. The next step is to see if I'll start to eat on my own if Jenny & James feed me less through my tube. Dr. Forman says that my weight is so good that I can afford to lose a little bit, if that's what it takes to get me eating again.
This week I'm down from 90 mL's three times a day to 70 mL's three times a day. I don't seem to be hungry yet. Tomorrow I'll drop to 50 mL's three times a day. Jenny & James can't wait to get me down to two feedings a day!
Even if I don't start eating on my own again, two feedings would be much more manageable (for me and them). There's also the option of having a different kind of PEG tube inserted, designed for long-term use (the length of tubing would detach when I wasn't being fed, so that I'd just have the plug in my side - no long tube to flop around, and no shirt to keep a long tube out of the way!).
But of course, the ideal scenario would be for me to get hungry and eat my k/d kibble again. I used to eat a little bit now & then right after my tube was inserted, so hopefully I enjoy the taste and sensation and I'll go back to it once I get hungry enough. Jenny bought a new bag so the food is nice & fresh.
The next few weeks are make-it-or-break-it-time, so wish me luck!
On Friday, the 100th day since I got my feeding tube, I saw Dr. Forman for a check-up. My weight at MedVet was 6 lbs., 2 oz.! He's really pleased with how I'm doing. The next step is to see if I'll start to eat on my own if Jenny & James feed me less through my tube. Dr. Forman says that my weight is so good that I can afford to lose a little bit, if that's what it takes to get me eating again.
This week I'm down from 90 mL's three times a day to 70 mL's three times a day. I don't seem to be hungry yet. Tomorrow I'll drop to 50 mL's three times a day. Jenny & James can't wait to get me down to two feedings a day!
Even if I don't start eating on my own again, two feedings would be much more manageable (for me and them). There's also the option of having a different kind of PEG tube inserted, designed for long-term use (the length of tubing would detach when I wasn't being fed, so that I'd just have the plug in my side - no long tube to flop around, and no shirt to keep a long tube out of the way!).
But of course, the ideal scenario would be for me to get hungry and eat my k/d kibble again. I used to eat a little bit now & then right after my tube was inserted, so hopefully I enjoy the taste and sensation and I'll go back to it once I get hungry enough. Jenny bought a new bag so the food is nice & fresh.
The next few weeks are make-it-or-break-it-time, so wish me luck!
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